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Tips for Salivary Gland Cancer Patients Living with Radiotherapy Late Effects

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Tips for Salivary Gland Cancer Patients Living with Radiotherapy Late Effects

30 Dec 2024 Share this article

Here you will hear some tips for living with radiotherapy late effects

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about 6 hours ago A donation of as little as £15 can help. With a donation of £15, we can host our email addresses for a month, to help build up our network of patients and researchers. #RareCancerResearch #RareCancerAwareness #RareCancers #RareCancer #RareDiseaseResearch @SGCancerUK

🎉 Happy New Year from all of us at SGCUK!

As we step into 2025, we want to thank every one of you for your incredible support, generosity, and strength over the past year. 💙

Together, we’ve made strides in raising awareness, moving research forwards, and supporting those affected by salivary gland cancer.

The New Year is a time for fresh starts and renewed hope.

Whether you’re a clinician, researcher, patient, carer, or supporter, we’re here with you every step of the way.

Let’s continue to work together to make 2025 a year of progress, care, and community.

Wishing you and your loved ones happiness, and hope in the year ahead 🌟

#HappyNewYear #SalivaryGlandCancer #HeadCancerAwareness #NeckCancer #NeckCancerAwareness #ThroatCancer #ThroatCancerAwareness @sgcanceruk

about a day ago 🎉 Happy New Year from all of us at SGCUK! As we step into 2025, we want to thank every one of you for your incredible support, generosity, and strength over the past year. 💙 Together, we’ve made strides in raising awareness, funding research, and supporting those affected by salivary gland cancer. The New Year is a time for fresh starts and renewed hope. Whether you’re a patient, carer, or supporter, we’re here with you every step of the way. Let’s continue to work together to make 2025 a year of progress, care, and community. Wishing you and your loved ones happiness, and hope in the year ahead 🌟 #HappyNewYear #SalivaryGlandCancer #HeadCancerAwareness #NeckCancer #NeckCancerAwareness #ThroatCancer #ThroatCancerAwareness @SGCancerUK

about 6 days ago Life can be unpredictable, and a salivary gland cancer diagnosis brings challenges that require immense strength. But through every treatment, every setback, and every small victory, one thing remains: resilience. Resilience is about more than just getting through the tough times – it's about embracing hope, finding courage, and pushing forward even when the road feels difficult. Together, we support those on this journey, reminding them they are never alone. You are not alone. #SGCAwareness #SupportSalivaryGlandCancerPatients #Cure4SGC #SalivaryGlandCancerUK #SalivaryGlandCancerUpdates @SGCancerUK

about 8 days ago 🎄 Merry Christmas from all of us at SGCUK As we celebrate this festive season, our thoughts are with those affected by salivary gland cancer who may be finding it hard to enjoy Christmas dinner due to treatment and recovery. We know how challenging it can be, especially during a time centred around food and togetherness. Please remember, you’re not alone. Whether you’re facing difficulties with eating, talking, or simply finding comfort, we’re here to support you. This Christmas, let’s hold space for kindness, compassion, and understanding – for ourselves and others. 💖 Sending love, strength, and warm wishes from all of us at SGCUK. #MerryChristmas #SalivaryGlandCancer #HeadAndNeckCancerSupport #HeadAndNeck #HeadAndNeckPathology #MouthCancerAwareness #MouthCancer @SGCancerUK

🎄 Merry Christmas from all of us at SGCUK

As we celebrate this festive season, our thoughts are with those affected by salivary gland cancer who may be finding it hard to enjoy Christmas dinner due to treatment and recovery.

We know how challenging it can be, especially during a time centred around food and togetherness. Please remind your patients that they're not alone.

They might be facing difficulties with eating, talking, or simply finding comfort, which can feel very challenging and isolating.

This Christmas, let’s hold space for kindness, compassion, and understanding – for ourselves and others. 💖

Sending love, strength, and warm wishes from all of us at SGCUK.

#MerryChristmas #SalivaryGlandCancer #HeadAndNeckCancerSupport #HeadAndNeck #HeadAndNeckPathology #MouthCancerAwareness #MouthCancer @sgcanceruk

about 11 days ago We’re honoured to share Matilda’s story about her journey with salivary gland cancer. Hearing real experiences can provide comfort, connection, and inspiration to others navigating this rare disease. You'll find lots of helpful videos and resources on our channel — go and check it out now. #HeadAndNeckCancer #HardPalateCancer #HeadAndNeckCancerAwareness #HeadAndNeckCancers #HeadCancer #Adenocarcinoma @SGCancerUK

Everyone has different motivations for fundraising and supporting SGCUK, Jev shares with us his inspiration for taking part in the Great South Run (GSR).

https://lnkd.in/eMsVphRr

#GreatSouthRun #BrightonMarathon #MarathonUK #UKCharity #CharityUK #CharityFundraiser #CharityFundraisers #CancerFundraiser @sgcanceruk

about 14 days ago 🎥 Watch our latest webinar on Adenocarcinoma Did you miss our recent webinar on Adenocarcinoma? Don’t worry – the session is now available on our YouTube channel. This insightful session is not to be missed. Whether you’re a patient, carer, or healthcare professional, this webinar is packed with valuable information. Don’t forget to like, share, and subscribe to our channel for more webinars, resources, and updates. Together, we can raise awareness and improve lives 💙 #AdenocarcinomaWebinar #Adenocarcinoma #SalivaryGlandCancer #Pathology #Genomics #GenomicsEngland #HeadAndNeckPathology @SGCancerUK

about 16 days ago 📢 Our 5-Year Impact Report is Here! We’re thrilled to share the release of our 5-Year Impact Report, highlighting the strides we’ve made together whilst advocating for better outcomes for salivary gland cancer patients. Over the past five years, your support has helped us: ✅ Fund critical research projects ✅ Provide resources and support for patients and families ✅ Raise awareness of this rare disease within the medical community and beyond This report isn’t just about numbers – it’s about the lives we’ve touched and the hope we’ve inspired. None of it would have been possible without our amazing supporters, volunteers, and partners. 💙 📖 Take a look at the report on our website under the 'About Us' section. As we reflect on the progress we’ve made, we’re reminded there’s still so much more to do. With your continued support, we can keep pushing forward, bringing brighter days to those affected by salivary gland cancer. Thank you for being part of this journey. Together, we make a difference. 💖 #5YearImpact #SalivaryGlandCancer #MakingADifference #SalivaryGlandCancerResearch #MedicalResearch @SGCancerUK

On our YouTube channel, you'll find a recording of Richard (RBV) NHS Ch Berman’s talk on Supportive Oncology from our October 2024 gathering in London.

Richard’s insights into the evolving field of supportive cancer care are truly inspiring and highlight its importance in improving the lives of patients affected by salivary gland cancer.

https://lnkd.in/eDwBuMyf

The Christie NHS Foundation Trust

#SupportiveOncology #SalivaryGlandCancer #CancerCare #OncologyCare #SGC #SGCUK #SalivaryGlandCancerAwareness #CancerSupportCommunity #CancerAwarenessCampaign @sgcanceruk

about 19 days ago What a day at the Swallows Conference! We had an incredible time at this year’s Swallows Conference, surrounded by inspiring individuals, vital conversations, and the shared drive to make a difference for those affected by salivary gland cancer. Barry, as always, was hard at work, keeping everything running smoothly (thank you, Barry! 🙌), while Emma was busy networking, catching up with old friends, and meeting new faces. There’s truly nothing like connecting with this wonderful community. Of course, Emma couldn’t resist squeezing in a session of photobiomodulation under the expert supervision of Emma Hallam! 😅 A massive thank you to everyone who came along to our stall and made it such a meaningful day. Together, we’re raising awareness, spreading knowledge, and building a future of hope. 💙 Chris Curtis The Swallows Head & Neck Cancer Support Group #SwallowsConference #SalivaryGlandCancer #CommunityMatters #MakingConnections #RareCancerResearch #RareDiseaseResearch #CancerResear @SGCancerUK

about 20 days ago 🌟 Join Our Salivary ‘Stop by’ Sessions! Are you or a loved one affected by salivary gland cancer? You’re not alone 💙 Our Salivary ‘Stop by’ Sessions are here to provide a safe, welcoming space to connect, share, and support one another. 🗓 When: Monday 6th January 7-8pm (the first Monday of every month) 💻 Where: Online via Zoom – join from the comfort of your home! 👥 What to Expect: ✨ Friendly and informal discussions ✨ A chance to connect with others who understand ✨ Helpful resources Whether you’re looking for advice, someone to talk to, or just a sense of community, we’re here for you. Come as you are, stay as long as you’d like – we’d love to see you! 📩 Register now via: [email protected] Together, we’re stronger 💖 #SalivaryStopBy #SalivaryStopBySession #CommunitySupport #SalivaryGlandCancer #YouAreNotAlone #SGCUK #SalivaryGlandCancerUK @SGCancerUK

about 23 days ago 🌟 Support Salivary Gland Cancer Awareness 🌟 Salivary gland cancer may be rare, but its impact is profound. Your generosity can help provide vital research and treatments for patients and their families. ✨ Every donation makes a difference ✨ Together, we can fund crucial research, offer support through events and resources, and raise awareness to create a brighter future. 💝 Visit our website to donate today to be part of this important cause. 🙌 Share this message to help spread awareness and encourage others to contribute. Your support means the world! @GivingTuesdayUK #GivingTuesday #GivingTuesdayUK #UKCharity #CharityUK #CharityFundraiser #CharityFundraisers #CancerFundraiser @SGCancerUK

about a month ago Hello friends! It would be really appreciated if you could nominate us to win £1,000 through the Movement For Good Awards 🙏🏼 Thank you so much for your help. #MovementForGoodAwards #MovementForGood #Charity #CharityFundraiser #CharityFundraising @SGCancerUK

about a month ago 📰 Stay informed with our YouTube channel... Jamie reminds us of the importance of speaking up, even when faced with resistance! On our channel, you'll get updates on salivary gland cancer news, events, and treatment options at your fingertips. Our videos offer valuable insights for patients, caregivers, clinicians, and researchers alike. Don't miss out—subscribe now and stay connected with our mission to make a difference for the salivary gland cancer community! #GenomicsEngland #SalivaryGlandCancerUK #Genomics #CancerAwarenessCommunity #CancerCommunity #Firemen #Firefighter @SGCancerUK

about a month ago SGC Travel Grants

about a month ago Don't miss out on our next gathering — join our network. Our network newsletter provides more than just updates—it's a source of inspiration, support, and solidarity for salivary gland cancer patients, caregivers, clinicians, researchers, and associated professionals. Sign up today to: ➡️ connect with others who understand your journey ➡️ access educational resources to help you navigate through ➡️ get updates on our gatherings and community achievements ➡️ hear about salivary gland cancer research #SGC #SGCUK #SalivaryGlandCancerAwareness #CancerSupportCommunity #CancerAwarenessCampaign @SGCancerUK

about a month ago 🧡 A Heartfelt Thank You to Our Wonderful Community! 🧡 We wanted to take a moment to express our deepest gratitude to everyone who joined us at the community gathering in support of salivary gland cancer awareness. Your presence, generosity, and heartfelt support mean the world to us and to all those affected by this rare condition. Together, we are raising awareness, funding important research, and making a real difference. None of this would be possible without you – thank you for standing by us and being part of this incredible cause! Let’s keep the momentum going – our community’s strength is unstoppable! 💪✨ #SalivaryGlandCancer #CancerAwareness #CancerSupport #CancerSupportNetwork #EndSGCancer @SGCancerUK

about a month ago We are pleased to announce that Emma has journeyed through award nomination, and underwent the research and judging stages — resulting in her being recognised for a well-deserved award 🥂 Emma has officially been recognised as Rare Cancer NPO Chairperson of the Year 2024 (UK)! A huge congratulations to Emma for all the hard work that goes into Salivary Gland Cancer UK 💐 Now in its fourth year, the CEO Monthly Chairperson Awards honour the outstanding accomplishments of individuals serving as role models. Such individuals are crucial to all organisations, because they lead the way with courage and dedication to achieve their shared mission. You can view the winner’s supplement and the full winners list on the CEO Monthly website. #RareCancerResearch #RareCancerAwareness #RareCancers #RareCancer #RareDiseaseResearch #CharityLeader #Leadership #CharityBoard @SGCancerUK

about a month ago One patient diagnosed with ACC of the lacrimal gland describes how his eye was bothering him and bulging slightly. Timely treatment allowed him to keep his eyesight. This story highlights the importance of early diagnosis and specialised treatment for complex salivary gland cancers such as #AdenoidCysticCarcinoma #SGC #SGCUK #SalivaryGlandCancerAwareness #CancerSupportCommunity #CancerAwarenessCampaign @SGCancerUK

about a month ago Salivary Gland Cancer UK has identified its 8 aims through patient-clinician co-production. Our fifth aim is to support the development of standardised guidelines for the management and surveillance of individual salivary gland cancers. #SGC #SGCUK #SalivaryGlandCancerAwareness #CancerSupportCommunity #CancerAwarenessCampaign @SGCancerUK

about a month ago Emma recently spoke to the Oral Health Foundation about salivary gland cancers to help highlight Mouth Cancer Action Month. If you'd like to listen to the episode, you can find it on Spotify and Apple Podcasts. #OralHealthFoundation #MouthCancerActionMonth #MouthCancerAwareness #MouthCancer #NeckCancer #ThroatCancer @SGCancerUK

about a month ago Not long until our next webinar and there's still time to join us 😃 @SGCancerUK

about a month ago There are some wonderful clips from our latest gathering in London, during October, on our YouTube channel. And don't forget to subscribe to our channel while you're over there! You'll discover updates on salivary gland cancer, including research breakthroughs, upcoming events, and treatment advancements. Our videos are designed for patients, caregivers, clinicians, and researchers to help our salivary gland cancer network stay informed and empowered. Join our growing community, subscribe today, and help us raise awareness and support for those affected by salivary gland cancer! 💙 #SalivaryGlandCancerCommunity #SalivaryCancerResources #CancerSupportGroups #SalivaryGlandCancerSupport #SalivaryGlandCancerResearch @SGCancerUK

about 2 months ago Tissues that are similar to salivary glands appear all around the body – including in the lining of the trachea – the tube that carries air in and out of the lungs. Adenoid Cystic Carcinoma (ACC) is the most common form of salivary gland-type tracheal cancer - although cancer of the trachea is rare, with only one in a thousand cancer cases being found there. Other salivary gland-type cancers, including Acinic Cell Carcinoma (AcCC) and Mucoepidermoid Carcinoma (MEC), can also present in the trachea. The trachea is between 10 and 15cm long and 2 to 3cm in diameter. It runs from the back of the throat (where it is attached to the bottom of the larynx or voice box) to the carina, where it splits in two, opening out into the left and right primary bronchi. These bronchi then go on to branch into a series of smaller airways that run throughout the lungs. Secretory glands with tissue very similar to that present in salivary glands can be found all across the inner surface of the trachea. They play an important role in protecting the lining of the airway, humidifying the air we breathe in and keeping the lungs healthy. The secretions they produce trap microorganisms, dust and allergens like pollen, which can then be swept back up the airway by tiny hairs called cilia. Cancers such as ACC in the trachea are often misdiagnosed as other respiratory complaints, including asthma and COPD, as breathlessness is one of the key early symptoms. You can listen to Barry and Sarah, two SGCUK members with ACC in the trachea, talk about their diagnosis and treatment on the stories section of our website. #Trachea #AdenoidCysticCarcinoma #AcinicCellCarcinoma #MucoepidermoidCarcinoma #SalivaryGlandCancer @SGCancerUK

about 2 months ago This week is London Global Cancer Week. LGCW aims to improve cancer outcomes by: ✅ encouraging collaboration ✅ raising awareness ✅ convening LGCW provides a space for a variety of speakers and organisations to host presentations on interesting topics around cancer... "Cancer has become a leading cause of death worldwide accounting globally for nearly one in six deaths (nearly 10 million deaths in 2020). The majority of cancer deaths occur in low- and middle-income countries (LMIC). Cancer disproportionately affects people in LMICs where there is a higher chance of late presentation and often limited access to preventative strategies, diagnostics, treatment and palliative care." London Global Cancer Week #RareCancerResearch #RareDiseaseResearch #CancerResearch #SalivaryGlandCancerResearch #MedicalResearch @SGCancerUK

about 2 months ago 🌟 Empowering Through Shared Experiences! We are incredibly grateful to those, such as Dawn, who have shared their personal stories of living with salivary gland cancer. Your willingness to be vulnerable and open up about your journey helps to empower others facing similar experiences. Let's continue to support one another by sharing our stories and spreading awareness and hope. #HeadCancerAwareness #NeckCancer #NeckCancerAwareness #ThroatCancer #ThroatCancerAwareness @SGCancerUK

about 2 months ago 🌈 There’s always hope, even in the face of uncertainty. Advances in treatment, increasing awareness, and the support of a caring community all help create a brighter future for those affected by salivary gland cancer. Whether you’ve been diagnosed or are supporting a loved one, know that hope is never out of reach. Let’s continue to raise awareness, fundraise, and spread positivity for those touched by these rare cancers. Together, we can make a lasting difference, one step at a time. #HopeInAction #SalivaryGlandCancerAwareness #YouAreNotAlone #HeadAndNeckPathology #MouthCancerAwareness #MouthCancer @SGCancerUK

about 2 months ago 🎗️ No one should face cancer alone. By donating, volunteering, or simply raising awareness, you can help provide critical resources to those navigating their salivary gland cancer journey. Your support helps fund essential research, offer patient services, and create educational programmes that empower patients and their families. Every contribution, big or small, makes an impact. Together, we can ensure that those affected by salivary gland cancer have the tools they need to face whatever lies ahead. #DonateToday #MakeAnImpact #CancerSupport #HeadAndNeckCancerSupport #HeadAndNeck #RareCancer @SGCancerUK

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