At the EURACAN board meeting in Warsaw last week, we were delighted to present the challenges of Salivary Gland Cancer patients with clinicians, researchers and other ePAGs (Patient Advocacy Groups).
We share many challenges with other rare cancers and we all discussed how we can continue to move forwards together and address the unmet needs.
Emma Kinloch](urn:li:person:EFKjHa5aqr) represented Salivary Gland Cancer UK and the Associazione Italiana Laryngectomizzati (AILAR) on a panel in Warsaw, and was joined in person by @[Eva-Maria Strömsholm and
Laura Urena.
Kathy Oliver,
Ariane Weinman and other ePAGs joined virtually.
It is fantastic to see
EURACAN continue to grow and expand. Working across borders is key to moving things forward for rare cancers. It was great to have colleagues from South America and Japan, as well as all over Europe and the UK, in the same room.
All discussions over the two days were lively, engaging and fruitful. There is alot of work to do and it is wonderful to have this group committed to doing it.
#euracan #rarecancer #salivaryglandcancer #rarecancerresearch #salivaryglandcancerresearch #cancer #patientadvocate
@sgcanceruk
