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Alison C's story

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Alison C's story

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In this short video Alison shares her story with us

Salivary Gland Cancers

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Patient and Carer Support

Support SGC UK (and get involved)

Everyone has different motivations for fundraising and supporting SGCUK, Jev shares with us his inspiration for taking part in the Great South Run (GSR).

https://lnkd.in/eMsVphRr

#GreatSouthRun #BrightonMarathon #MarathonUK #UKCharity #CharityUK #CharityFundraiser #CharityFundraisers #CancerFundraiser @sgcanceruk

about 2 days ago 🎥 Watch our latest webinar on Adenocarcinoma Did you miss our recent webinar on Adenocarcinoma? Don’t worry – the session is now available on our YouTube channel. This insightful session is not to be missed. Whether you’re a patient, carer, or healthcare professional, this webinar is packed with valuable information. Don’t forget to like, share, and subscribe to our channel for more webinars, resources, and updates. Together, we can raise awareness and improve lives 💙 #AdenocarcinomaWebinar #Adenocarcinoma #SalivaryGlandCancer #Pathology #Genomics #GenomicsEngland #HeadAndNeckPathology @SGCancerUK

about 4 days ago 📢 Our 5-Year Impact Report is Here! We’re thrilled to share the release of our 5-Year Impact Report, highlighting the strides we’ve made together whilst advocating for better outcomes for salivary gland cancer patients. Over the past five years, your support has helped us: ✅ Fund critical research projects ✅ Provide resources and support for patients and families ✅ Raise awareness of this rare disease within the medical community and beyond This report isn’t just about numbers – it’s about the lives we’ve touched and the hope we’ve inspired. None of it would have been possible without our amazing supporters, volunteers, and partners. 💙 📖 Take a look at the report on our website under the 'About Us' section. As we reflect on the progress we’ve made, we’re reminded there’s still so much more to do. With your continued support, we can keep pushing forward, bringing brighter days to those affected by salivary gland cancer. Thank you for being part of this journey. Together, we make a difference. 💖 #5YearImpact #SalivaryGlandCancer #MakingADifference #SalivaryGlandCancerResearch #MedicalResearch @SGCancerUK

On our YouTube channel, you'll find a recording of Richard (RBV) NHS Ch Berman’s talk on Supportive Oncology from our October 2024 gathering in London.

Richard’s insights into the evolving field of supportive cancer care are truly inspiring and highlight its importance in improving the lives of patients affected by salivary gland cancer.

https://lnkd.in/eDwBuMyf

The Christie NHS Foundation Trust

#SupportiveOncology #SalivaryGlandCancer #CancerCare #OncologyCare #SGC #SGCUK #SalivaryGlandCancerAwareness #CancerSupportCommunity #CancerAwarenessCampaign @sgcanceruk

about 7 days ago What a day at the Swallows Conference! We had an incredible time at this year’s Swallows Conference, surrounded by inspiring individuals, vital conversations, and the shared drive to make a difference for those affected by salivary gland cancer. Barry, as always, was hard at work, keeping everything running smoothly (thank you, Barry! 🙌), while Emma was busy networking, catching up with old friends, and meeting new faces. There’s truly nothing like connecting with this wonderful community. Of course, Emma couldn’t resist squeezing in a session of photobiomodulation under the expert supervision of Emma Hallam! 😅 A massive thank you to everyone who came along to our stall and made it such a meaningful day. Together, we’re raising awareness, spreading knowledge, and building a future of hope. 💙 Chris Curtis The Swallows Head & Neck Cancer Support Group #SwallowsConference #SalivaryGlandCancer #CommunityMatters #MakingConnections #RareCancerResearch #RareDiseaseResearch #CancerResear @SGCancerUK

about 8 days ago 🌟 Join Our Salivary ‘Stop by’ Sessions! Are you or a loved one affected by salivary gland cancer? You’re not alone 💙 Our Salivary ‘Stop by’ Sessions are here to provide a safe, welcoming space to connect, share, and support one another. 🗓 When: Monday 6th January 7-8pm (the first Monday of every month) 💻 Where: Online via Zoom – join from the comfort of your home! 👥 What to Expect: ✨ Friendly and informal discussions ✨ A chance to connect with others who understand ✨ Helpful resources Whether you’re looking for advice, someone to talk to, or just a sense of community, we’re here for you. Come as you are, stay as long as you’d like – we’d love to see you! 📩 Register now via: [email protected] Together, we’re stronger 💖 #SalivaryStopBy #SalivaryStopBySession #CommunitySupport #SalivaryGlandCancer #YouAreNotAlone #SGCUK #SalivaryGlandCancerUK @SGCancerUK

about 11 days ago 🌟 Support Salivary Gland Cancer Awareness 🌟 Salivary gland cancer may be rare, but its impact is profound. Your generosity can help provide vital research and treatments for patients and their families. ✨ Every donation makes a difference ✨ Together, we can fund crucial research, offer support through events and resources, and raise awareness to create a brighter future. 💝 Visit our website to donate today to be part of this important cause. 🙌 Share this message to help spread awareness and encourage others to contribute. Your support means the world! @GivingTuesdayUK #GivingTuesday #GivingTuesdayUK #UKCharity #CharityUK #CharityFundraiser #CharityFundraisers #CancerFundraiser @SGCancerUK

about 18 days ago Hello friends! It would be really appreciated if you could nominate us to win £1,000 through the Movement For Good Awards 🙏🏼 Thank you so much for your help. #MovementForGoodAwards #MovementForGood #Charity #CharityFundraiser #CharityFundraising @SGCancerUK

about 20 days ago 📰 Stay informed with our YouTube channel... Jamie reminds us of the importance of speaking up, even when faced with resistance! On our channel, you'll get updates on salivary gland cancer news, events, and treatment options at your fingertips. Our videos offer valuable insights for patients, caregivers, clinicians, and researchers alike. Don't miss out—subscribe now and stay connected with our mission to make a difference for the salivary gland cancer community! #GenomicsEngland #SalivaryGlandCancerUK #Genomics #CancerAwarenessCommunity #CancerCommunity #Firemen #Firefighter @SGCancerUK

about 22 days ago SGC Travel Grants

about 23 days ago Don't miss out on our next gathering — join our network. Our network newsletter provides more than just updates—it's a source of inspiration, support, and solidarity for salivary gland cancer patients, caregivers, clinicians, researchers, and associated professionals. Sign up today to: ➡️ connect with others who understand your journey ➡️ access educational resources to help you navigate through ➡️ get updates on our gatherings and community achievements ➡️ hear about salivary gland cancer research #SGC #SGCUK #SalivaryGlandCancerAwareness #CancerSupportCommunity #CancerAwarenessCampaign @SGCancerUK

about 25 days ago 🧡 A Heartfelt Thank You to Our Wonderful Community! 🧡 We wanted to take a moment to express our deepest gratitude to everyone who joined us at the community gathering in support of salivary gland cancer awareness. Your presence, generosity, and heartfelt support mean the world to us and to all those affected by this rare condition. Together, we are raising awareness, funding important research, and making a real difference. None of this would be possible without you – thank you for standing by us and being part of this incredible cause! Let’s keep the momentum going – our community’s strength is unstoppable! 💪✨ #SalivaryGlandCancer #CancerAwareness #CancerSupport #CancerSupportNetwork #EndSGCancer @SGCancerUK

about 26 days ago We are pleased to announce that Emma has journeyed through award nomination, and underwent the research and judging stages — resulting in her being recognised for a well-deserved award 🥂 Emma has officially been recognised as Rare Cancer NPO Chairperson of the Year 2024 (UK)! A huge congratulations to Emma for all the hard work that goes into Salivary Gland Cancer UK 💐 Now in its fourth year, the CEO Monthly Chairperson Awards honour the outstanding accomplishments of individuals serving as role models. Such individuals are crucial to all organisations, because they lead the way with courage and dedication to achieve their shared mission. You can view the winner’s supplement and the full winners list on the CEO Monthly website. #RareCancerResearch #RareCancerAwareness #RareCancers #RareCancer #RareDiseaseResearch #CharityLeader #Leadership #CharityBoard @SGCancerUK

about 28 days ago One patient diagnosed with ACC of the lacrimal gland describes how his eye was bothering him and bulging slightly. Timely treatment allowed him to keep his eyesight. This story highlights the importance of early diagnosis and specialised treatment for complex salivary gland cancers such as #AdenoidCysticCarcinoma #SGC #SGCUK #SalivaryGlandCancerAwareness #CancerSupportCommunity #CancerAwarenessCampaign @SGCancerUK

about a month ago Salivary Gland Cancer UK has identified its 8 aims through patient-clinician co-production. Our fifth aim is to support the development of standardised guidelines for the management and surveillance of individual salivary gland cancers. #SGC #SGCUK #SalivaryGlandCancerAwareness #CancerSupportCommunity #CancerAwarenessCampaign @SGCancerUK

about a month ago Emma recently spoke to the Oral Health Foundation about salivary gland cancers to help highlight Mouth Cancer Action Month. If you'd like to listen to the episode, you can find it on Spotify and Apple Podcasts. #OralHealthFoundation #MouthCancerActionMonth #MouthCancerAwareness #MouthCancer #NeckCancer #ThroatCancer @SGCancerUK

about a month ago Not long until our next webinar and there's still time to join us 😃 @SGCancerUK

about a month ago There are some wonderful clips from our latest gathering in London, during October, on our YouTube channel. And don't forget to subscribe to our channel while you're over there! You'll discover updates on salivary gland cancer, including research breakthroughs, upcoming events, and treatment advancements. Our videos are designed for patients, caregivers, clinicians, and researchers to help our salivary gland cancer network stay informed and empowered. Join our growing community, subscribe today, and help us raise awareness and support for those affected by salivary gland cancer! 💙 #SalivaryGlandCancerCommunity #SalivaryCancerResources #CancerSupportGroups #SalivaryGlandCancerSupport #SalivaryGlandCancerResearch @SGCancerUK

about a month ago Tissues that are similar to salivary glands appear all around the body – including in the lining of the trachea – the tube that carries air in and out of the lungs. Adenoid Cystic Carcinoma (ACC) is the most common form of salivary gland-type tracheal cancer - although cancer of the trachea is rare, with only one in a thousand cancer cases being found there. Other salivary gland-type cancers, including Acinic Cell Carcinoma (AcCC) and Mucoepidermoid Carcinoma (MEC), can also present in the trachea. The trachea is between 10 and 15cm long and 2 to 3cm in diameter. It runs from the back of the throat (where it is attached to the bottom of the larynx or voice box) to the carina, where it splits in two, opening out into the left and right primary bronchi. These bronchi then go on to branch into a series of smaller airways that run throughout the lungs. Secretory glands with tissue very similar to that present in salivary glands can be found all across the inner surface of the trachea. They play an important role in protecting the lining of the airway, humidifying the air we breathe in and keeping the lungs healthy. The secretions they produce trap microorganisms, dust and allergens like pollen, which can then be swept back up the airway by tiny hairs called cilia. Cancers such as ACC in the trachea are often misdiagnosed as other respiratory complaints, including asthma and COPD, as breathlessness is one of the key early symptoms. You can listen to Barry and Sarah, two SGCUK members with ACC in the trachea, talk about their diagnosis and treatment on the stories section of our website. #Trachea #AdenoidCysticCarcinoma #AcinicCellCarcinoma #MucoepidermoidCarcinoma #SalivaryGlandCancer @SGCancerUK

about a month ago This week is London Global Cancer Week. LGCW aims to improve cancer outcomes by: ✅ encouraging collaboration ✅ raising awareness ✅ convening LGCW provides a space for a variety of speakers and organisations to host presentations on interesting topics around cancer... "Cancer has become a leading cause of death worldwide accounting globally for nearly one in six deaths (nearly 10 million deaths in 2020). The majority of cancer deaths occur in low- and middle-income countries (LMIC). Cancer disproportionately affects people in LMICs where there is a higher chance of late presentation and often limited access to preventative strategies, diagnostics, treatment and palliative care." London Global Cancer Week #RareCancerResearch #RareDiseaseResearch #CancerResearch #SalivaryGlandCancerResearch #MedicalResearch @SGCancerUK

about a month ago 🌟 Empowering Through Shared Experiences! We are incredibly grateful to those, such as Dawn, who have shared their personal stories of living with salivary gland cancer. Your willingness to be vulnerable and open up about your journey helps to empower others facing similar experiences. Let's continue to support one another by sharing our stories and spreading awareness and hope. #HeadCancerAwareness #NeckCancer #NeckCancerAwareness #ThroatCancer #ThroatCancerAwareness @SGCancerUK

about a month ago 🌈 There’s always hope, even in the face of uncertainty. Advances in treatment, increasing awareness, and the support of a caring community all help create a brighter future for those affected by salivary gland cancer. Whether you’ve been diagnosed or are supporting a loved one, know that hope is never out of reach. Let’s continue to raise awareness, fundraise, and spread positivity for those touched by these rare cancers. Together, we can make a lasting difference, one step at a time. #HopeInAction #SalivaryGlandCancerAwareness #YouAreNotAlone #HeadAndNeckPathology #MouthCancerAwareness #MouthCancer @SGCancerUK

about a month ago 🎗️ No one should face cancer alone. By donating, volunteering, or simply raising awareness, you can help provide critical resources to those navigating their salivary gland cancer journey. Your support helps fund essential research, offer patient services, and create educational programmes that empower patients and their families. Every contribution, big or small, makes an impact. Together, we can ensure that those affected by salivary gland cancer have the tools they need to face whatever lies ahead. #DonateToday #MakeAnImpact #CancerSupport #HeadAndNeckCancerSupport #HeadAndNeck #RareCancer @SGCancerUK

about a month ago 💛 Share your strength and your story. Whether you're a patient, a carer, or someone supporting a loved one, your story can inspire and uplift others in the salivary gland cancer community. Every journey is different, but sharing your experiences offers hope, encouragement, and valuable insight to those who need it most. Let’s build a network of care and understanding, where every voice is heard, and every challenge is met with compassion. Together, we can create a supportive space for healing and hope. #HopeAndHealing #ShareYourStory #HeadAndNeckCancer #HardPalateCancer #SalivaryGlandCancer @SGCancerUK

about 2 months ago At our last gathering in March 2024, Dr Matt Church gave a talk on cancer genomics; whole genome sequencing. You'll find lots of educational talks on salivary gland cancer over on our YouTube channel. Be sure to check it out! #Genome #CancerGenomics #HeadAndNeckPathology #MouthCancerAwareness #MouthCancer #WGS @SGCancerUK

about 2 months ago 💪 Every step forward makes a difference. Whether you're raising awareness, volunteering your time, or offering support to someone affected by salivary gland cancer, every action counts. By getting involved, you can make a meaningful impact in the lives of individuals facing this diagnosis. Together, we can raise awareness, fund research, and ensure no one has to go through this journey alone. Let’s keep moving forward, step by step, making a real change and supporting each other. #TakeAction #CommunitySupport #SalivaryGlandCancerAwareness #RareCancerResearch #RareDiseaseResearch #CancerResearch @SGCancerUK

about 2 months ago 🎗️ Did you know? Salivary gland cancer is rare, but when caught early, treatments can be more effective. Unfortunately, many people aren’t familiar with the symptoms, meaning they might delay seeking help. Our mission is to change that by educating others about the importance of recognising the signs and acting early. With more awareness, we can help ensure that more people are diagnosed in the early stages, improving outcomes and saving lives. Help us spread the word—awareness is the first step towards progress. #CancerEducation #SalivaryGlandFacts #SpreadAwareness #SalivaryGlandCancerEducation #SalivaryGlandCancer @SGCancerUK

about 2 months ago 🌟 Honour. Support. Remember. Today, we take a moment to think of those that are living with salivary gland cancer and remember those who have lost their lives to it. Every journey is unique, but each one shows incredible strength and determination. Whether you're honouring a loved one’s memory or supporting someone in treatment, your presence matters. Let’s come together to provide hope, strength, and healing for all those affected by this rare disease. #NeverForgotten #CancerCommunity #CancerSupportGroup #HopeAndHealing @SGCancerUK

about 2 months ago The spine gives your body structure, and helps you to sit, stand, walk, twist and bend. It also protects the nerves that travel through its centre in the spinal cord. It is made up of: • Vertebrae: 33 stacked, small bones that form the spinal canal. • Intervertebral disks: flat, round cushions with a gel-like centre that sit between the vertebrae acting as the spine’s shock absorber. • Facet joints: which hold the vertebrae together. Their cartilage allows the bones to slide against each other so we can twist and turn. • The spinal cord: the group of nerves that travel through the spinal canal. Messages are sent between the brain and muscles via 31 pairs of nerves that branch out through openings in the vertebrae. • Soft tissue: Ligaments, tendons and muscles, which help connect and support the vertebrae and aid movement. The spine starts at the base of the skull, and ends at the tailbone, which is part of the pelvis. It is not straight, but curves to form an S shape. This helps the spine to absorb shocks and avoid injury. It’s split into five sections: • Cervical spine (neck): seven vertebrae, that allow you to move your head. • Thoracic spine (middle back): 12 vertebrae which are attached to your ribs. • Lumbar spine (lower back): five vertebrae that support the upper parts of your spine, connect to your pelvis and bear most of your body’s weight, as well as the stress of lifting. • Sacrum: five vertebrae that are fused together into a triangle-shaped bone and cannot move independently. It connects to your hips. • Coccyx: Four fused vertebrae to which pelvic floor muscles and ligaments are attached. Metastases (secondary cancer growths) can occur in the bone of the spine in salivary gland cancers - although it's important to note many patients do not go on to develop such secondary growths. Symptoms of metastasis in the spine can include back pain and kyphosis (curvature of the spine which causes the back to look more rounded than usual). However, bone metastases can be asymptomatic, especially in the earlier stages, and so they are often only discovered incidentally during routine scans. You can listen to Alison C talk about her diagnosis and treatment for ACC spine metastases here. (Begins at 2.50 in the interview.) #Metastases #BoneMetastases #SpineMetastases #SalivaryGlandCancer #Genomics #Pathology @SGCancerUK

about 2 months ago 💙 You are never alone on this journey. Whether you've just been diagnosed, are undergoing treatment, or are in remission, our community is here to offer support, understanding, and care. We know the emotional and physical challenges that salivary gland cancer brings, but with the right support, you can feel empowered and resilient. Reach out, share your experiences, and lean on others who have faced a similar path. We are stronger together. #SupportMatters #StrongerTogether #SalivaryGlandCancer @SGCancerUK

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