Our Stories

People with salivary gland cancer's from the UK and further afield share their stories. From initial diagnosis and treatment, to getting on with life afterwards, they explain more about what living with SGC means for them. You can also watch the videos and listen to the podcasts of presentations and discussions with our speakers on our YouTube Channel.

Ruth's story

By Rosanna Hunter

Ruth on life with ACC, her treatment for lung metastases and how she likes to keep up with all the latest research.

Alex's story

03 Jun 2024

Alex talks about how she was diagnosed with ACC after developing a snore that sounded like a 'honking goose'

Alison's story

Alison on being diagnosed with ACC after going to the doctor with frequent sore throats, and how she managed to continue eating through 30 rounds of radiotherapy

Alison C's story

Alison shares the story of her diagnosis of ACC in the submandibular gland in 2007

Allison D's story

Allison shares the story of her diagnosis of ACC while she was pregnant in 2011.

Barry's story

Barry on having ACC in the trachea, how to navigate the NHS, and how he found being part of SGC UK transformative.

Christine's story

When Christine was diagnosed with Adenoid Cystic Carcinoma she found that going for a run helped her cope.

Dawn's story

Dawn shares her story of being diagnosed with unknown carcinoma in her left sublingual gland

Heather's story

13 Nov 2024

Heather talks about how she was diagnosed with acinic cell carcinoma

Ian's story

Ian on being diagnosed with ACC, how he managed work and treatment and dealing with radiotherapy.

Jade's story

Jade, diagnosed at 27 with Acinic Cell Carcinoma when she was pregnant, shares her story.

Jamie's story

13 Nov 2024

Jamie talks about his diagnosis of ACC with a NOTCH mutation after developing a twinge in his mouth area

Jev's story

Jev writes about why he's running the Brighton Marathon in 2025, his story of being diagnosed and treated for Salivary Gland Cancer

Jim's story

11 Dec 2024

Jim talks about his diagnosis of ACC, why he is using an electrolarynx and his most recent SABR treatment.

Kamla's story

Kamla talks about her diagnosis with ACC, carbon ion treatment and quality of life.

Karen's story

11 Dec 2024

Karen shares her experience of salivary gland cancer diagnosis, how her relationship with food has completely changed, and what she thought of the latest SGCUK gathering.

Matilda's story

11 Dec 2024

Matilda talks about her diagnosis of adenocarcinoma after having her wisdom teeth removed in 1984

Sarah's story

Sarah on her diagnosis of ACC in the trachea, her carbon ion treatment in Heidelberg and why supporting research is important to her.

Shane's story

After losing his right eye due to Adenoid Cystic Carcinoma, Shane talks about he has adjusted to the loss.

Wendy's story

Wendy on her radiotherapy treatment for ACC, living with necrosis, and why she finds the SGC UK meetings a support.