Salivary Gland Cancer UK
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  • About Us
    • Our Mission
    • The Story so Far - Our 5 year impact Report (2024)
    • Our 8 Aims
    • SGC Research
    • SGC Research Grants
    • UK Salivary Gland Cancer Research Working Group (UKSGCWG)
    • SGC Travel Grants
    • Board of Directors
    • Our Partners
    • Salivary Gland Cancer UK Mascots
    • PPIE (Patient and Public Involvement and Engagement) Work
  • Treatment Options
    • Diagnosis
    • Surgery
    • Radiotherapy
    • Drug Therapies
      • Drug Therapies - Immunotherapy
    • Clinical Trials
    • Radiofrequency ablation (RFA)
    • Gene profiling or tumour profiling or genomic testing
    • Patient follow up after treatment for SGC
  • Our Stories
    • Alex's story
    • Alison's story
    • Allison D's story
    • Barry's story
    • Christine's story
    • Dawn's story
    • Heather's story
    • Ian's story
    • Jade's story
    • Jamie's story
    • Jev's story
    • Jim's story
    • Karen's story
    • Matilda's story
    • Sarah's story
    • Shane's story
    • Susan's story
  • Patient and Carer Support
    • Anxiety Management Techniques
    • Exercise for the head, neck and shoulder area
    • Returning to Work
    • Tips on communicating with an electrolarynx
    • How can I best support my mother?
    • Kemi shares her advice for supporting a loved one with cancer
    • Radiotherapy Treatment and Late Effects
      • The Late Effects of Radiotherapy Treatment with Emma Hallam, Consultant Therapeutic Radiographer
      • What is Radiation Induced Fibrosis? And How To Reduce Its Effects
      • Tips for Salivary Gland Cancer Patients Living with Radiotherapy Late Effects
      • Top tips for radiotherapy treatment from our network member Dawn
    • Dawn's tips for someone close to someone with Salivary Gland Cancer
    • Pain
    • Quality of Life (QoL) in Adenoid Cystic Carcinoma (ACC) Patients with Dr Joe Haigh
    • Mindfulness Practice with Emma Hallam, Consultant Therapeutic Radiographer
    • Psychological Support for those affected by Salivary Gland Cancers
  • Support SGC UK (and get involved)
    • Join Our Network (and get our newsletter)
    • Donate tissue to the Biobank
    • Our 2025 Events (gatherings and webinars)
    • Donate and help our work
    • Patient – Researcher Trial Discussions
    • Podcasts and Videos
    • Volunteering with SGC UK at a conference or event
    • Salivary Gland Cancer Day - 4th October
      • Salivary Gland Cancer Awareness Day - What to expect
    • SGC UK Shareable Resources
    • Leaflets and Flyers
    • Ribbon badges, baseball caps, trolley coin fobs and more in our shop
  • Salivary Gland Cancers
    • A guide to different types of Salivary Gland Cancers
    • Acinic Cell Carcinoma (AcCC)
    • Adenocarcinoma
    • Adenocarcinoma, NOS
    • Adenoid Cystic Carcinoma (ACC)
    • Basal Cell Adenocarcinoma (BCAC)
    • Hyalinising Clear Cell Carcinoma (CCC)
    • Mucoepidermoid Carcinoma (MEC) & Warthin-like MEC
    • Salivary Duct Carcinoma (SDC)
    • Secretory Carcinoma (SC)
    • Polymorphus adenocarcinoma (PAC)
    • Carcinosarcoma
    • Myoepithelial carcinoma (MC)
  • Body sites affected by SGC
    • Major Salivary Glands - Parotid, Sublingual and Submandibular
    • Secretory Glands - The Lacrimal Gland
    • Secretory Glands - Bartholin's Gland
    • Secretory Glands - The Lining of the Trachea
    • Skin
    • Nerves in the Head and Neck - Trigeminal Nerve
    • Nerves in the Head and Neck - Optic Nerve
    • Bone Structures in the Face
    • The Spine
    • Breast
    • The Ears
    • The Eye
    • How we taste
    • How we swallow
  • Fundraising for SGC UK
    • Run
    • Walk
    • Swim
    • Some fundraising ideas
    • Paying in the funds you've raised
    • Fundraising at work
    • Leaving a gift in your will
  • Salivary Gland Cancer Science - Research Updates
    • Salivary gland cancer: new classifications and diagnostic challenges
    • Association of quality of life with mortality in patients with adenoid cystic carcinoma using an internationally-validated QoL questionnaire (EQ-5D-5L)
    • Tracheal Adenoid Cystic Carcinoma: why studying it matters - and how biobanks help
    • New study examining disruption of oncogenic pathways in mucoepidermoid carcinoma (MEC)
    • New study reveals late recurrence and low survival rate of adenoid cystic carcinoma of the breast
    • New study using real-world UK data supports the use of HER2-directed therapies for HER2-positive salivary gland cancers
  • UK Salivary Gland Cancer Research Working Group (UKSGCRWG)
    • Research Working Group Members
    • RQ 1. Address the utility of Guidelines for Salivary Gland Cancers (SGC)
    • RQ 2. Assess the variation in histopathology reporting for Salivary Gland Cancers (SGC)
    • RQ 3. Standardise the decision-making processes for patients who have technically operable, Salivary Gland Cancer (SGC), where the surgery carries high morbidity
    • RQ 4. Improve the diagnostic pathway for Salivary Gland Cancer (SGC) patients
Join Our Network Add to Biobank Our Events Donate Shop

Working for those with rare salivary gland cancers.

Acinic Cell Carcinoma (AcCC)
Adenocarcinoma
Adenocarcinoma, NOS
Adenoid Cystic Carcinoma (ACC)
Basal Cell Adenocarcinoma (BCAC)
Clear Cell Carcinoma (CCC)
Salivary Duct Carcinoma (SDC)
Secretory Carcinoma (SC)
Mucoepidermoid Carcinoma (MEC)
Myoepithelial Carcinoma (MC)
Carcinosarcoma
Polymorphous Adenocarcinoma

Salivary Gland Cancer Day - 4th October

19 Sep 2025

Raising Awareness for a Rare Disease. Welcome to the WORLD'S FIRST Salivary Gland Cancer Day, being held annually on the 4th of October.

Mucoepidermoid Carcinoma (MEC) & Warthin-like MEC

Mucoepidermoid Carcinoma (MEC) including Warthin-like MEC

Myoepithelial carcinoma (MC)

Myoepithelial carcinoma makes up less than 2% of all salivary gland tumours

Polymorphus adenocarcinoma (PAC)

Polymorphous adenocarcinoma (PAC) accounts for around 12% of malignant salivary gland tumours

Carcinosarcoma

Carcinosarcoma accounts for less than 1% of all salivary gland tumours

Acinic Cell Carcinoma (AcCC)

Acinic cell carcinomas account for 1-6% of salivary gland tumours.

Basal Cell Adenocarcinoma (BCAC)

Basal Cell Adenocarcinoma (BCAC) accounts for 1-3% of salivary gland cancers

UK Salivary Gland Cancer Research Working Group (UKSGCWG)

26 May 2025

This working group is to identify the gaps in Salivary Gland Cancer Research, develop strategic priorities for this area of research and deliver them.

Adenoid Cystic Carcinoma (ACC)

Adenoid Cystic Carcinoma (ACC)

The Story so Far - Our 5 year impact Report (2024)

28 Jan 2025

Our impact report showcases all the progress that's been made in just five years (2019-2024)

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Salivary Gland Cancers
Our Stories
Patient and Carer Support
Support SGC UK (and get involved)
about 6 hours ago What a day we had on Saturday - The first ever Salivary Gland Cancer Awareness Day was held at Manchester Art Gallery including patients and clincians coming together to share their stories, experiences, research, hopes and plans for the future. - Thanks to everyone who came, those who supported, all those who shared on social media.... we are so excited to see where this bright beginning takes us. #sgcday #SalivaryGlandCancerDay @SGCancerUK
about a day ago What an incredible day at The Big Half! A huge thank you to every single one of our runners who took on the 13.1-mile course. Your determination and hard work have raised vital funds that will directly support our mission. Feeling inspired? There are so many ways you can get involved and make a difference. Check out our website for upcoming events and opportunities to join our team of fundraising heroes! #TheBigHalf #Fundraising #CharityRunner #SGCUK #JoinTheTeam @SGCancerUK
about 3 days ago Thank you to everyone who joined us in making this day a success! This is a marathon, not a sprint. Together, we are building a stronger, more informed, and more supportive community. Let's keep the momentum going and keep pushing forwards. #OneCommunityOneCause #SGCDay #SalivaryGlandCancerDay @SGCancerUK
Thank you to everyone who joined us in making this day a success! This is a marathon, not a sprint. Together, we are building a stronger, more informed, and more supportive community. Let's keep the momentum going and keep pushing forwards.

#OneCommunityOneCause #SGCDay #SalivaryGlandCancerDay
@sgcanceruk
about 3 days ago Our eighth and final core aim is to support the development of standard drug treatments for salivary gland cancers to improve life expectancy and survivorship. We are doing this by: ✔️Supporting basic research into the biology of individual salivary gland cancers. ✔️Supporting translational research that turns this basic knowledge into effective treatments. ✔️Developing and pushing forward drug trials to test the effectiveness of both existing drugs and those specifically developed to target a particular salivary gland cancer. This work is at the heart of our mission to find better ways to treat these rare cancers and improve patient outcomes. #SalivaryGlandCancerUK #CancerTreatment #DrugTrials #Research #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 4 days ago Our seventh core aim is to support the development of surgical and radiotherapy treatments to deliver improved survivorship and quality-of-life post-treatment for salivary gland cancer patients. We are focused on: ✔️Improving the treatments themselves, aiming for higher success rates and fewer long-term side effects. ✔️Enhancing post-treatment life, helping patients not just survive, but thrive, with a better quality of life. This is about more than just fighting cancer; it's about rebuilding lives. #SalivaryGlandCancerUK #SurgicalTreatment #QualityOfLife #Survivorship #SGCDay #SalivaryGlandCancerDay #LWBC @SGCancerUK
Our eighth and final core aim is to support the development of standard drug treatments for salivary gland cancers to improve life expectancy and survivorship. We are doing this by:

✔️Supporting basic research into the biology of individual salivary gland cancers.

✔️Supporting translational research that turns this basic knowledge into effective treatments.

✔️Developing and pushing forward drug trials to test the effectiveness of both existing drugs and those specifically developed to target a particular salivary gland cancer.

This work is at the heart of our mission to find better ways to treat these rare cancers and improve patient outcomes.

#SalivaryGlandCancerUK #CancerTreatment #DrugTrials #Research #SGCDay #SalivaryGlandCancerDay
@sgcanceruk
about 4 days ago Our sixth core aim is to understand the effectiveness of different types of radiotherapy for specific salivary gland cancers. We are dedicated to: ✔️Gathering data and insights on how various radiotherapy techniques impact patient outcomes. ✔️Working with researchers and clinicians to identify the most effective and least toxic treatments for each type of salivary gland cancer. This work is crucial for optimising care and improving long-term health. #SalivaryGlandCancerUK #Radiotherapy #CancerResearch #BetterTreatment #SGCDay #SalivaryGlandCancerDay @SGCancerUK
Our seventh core aim is to support the development of surgical and radiotherapy treatments to deliver improved survivorship and quality-of-life post-treatment for salivary gland cancer patients. We are focused on:

✔️Improving the treatments themselves, aiming for higher success rates and fewer long-term side effects.

✔️Enhancing post-treatment life, helping patients not just survive, but thrive, with a better quality of life.

This is about more than just fighting cancer; it's about rebuilding lives.
#SalivaryGlandCancerUK #SurgicalTreatment #QualityOfLife #Survivorship #SGCDay #SalivaryGlandCancerDay #LWBC
@sgcanceruk
about 4 days ago Our fifth core aim is to support the development of standardised guidelines for the management and surveillance of individual salivary gland cancers. With these being rare cancers, guidelines can vary. We're helping to: ✔️Ensure consistent, high-quality care across the country. ✔️Provide clear protocols for managing these cancers, from initial treatment to long-term follow-up. Standardised care ensures that every patient gets the best possible support, no matter where they are. #SalivaryGlandCancerUK #ClinicalGuidelines #BestPractice #Healthcare #SGCDay #SalivaryGlandCancerDay @SGCancerUK
Our sixth core aim is to understand the effectiveness of different types of radiotherapy for specific salivary gland cancers. We are dedicated to:

✔️Gathering data and insights on how various radiotherapy techniques impact patient outcomes.

✔️Working with researchers and clinicians to identify the most effective and least toxic treatments for each type of salivary gland cancer.

This work is crucial for optimising care and improving long-term health.
#SalivaryGlandCancerUK #Radiotherapy #CancerResearch #BetterTreatment #SGCDay #SalivaryGlandCancerDay
@sgcanceruk
about 4 days ago A massive thank you to all those have joined us today at the Manchester Art Gallery today for the Inaugural Salivary Gland Cancer Day. We have just enjoyed a lovely lunch and networking and now back to it for the afternoon session featuring more patients and clinicians. #onecommunityonecause #sgcday #salivaryglandcancerday @SGCancerUK
about 4 days ago Our fourth core aim is to optimise the pathways to diagnosis. Navigating the healthcare system can be complex and stressful. We are working to: ✔️Improve the efficiency and speed of the diagnostic process for salivary gland cancers. ✔️Support patients as they move through different stages of diagnosis, from initial consultation to receiving a definitive answer. A smooth and swift pathway to diagnosis can make a world of difference. #SalivaryGlandCancerUK #PatientCare #DiagnosisPathway #SGCDay #SalivaryGlandCancerDay @SGCancerUK
Our fifth core aim is to support the development of standardised guidelines for the management and surveillance of individual salivary gland cancers. With these being rare cancers, guidelines can vary.
We're helping to:

✔️Ensure consistent, high-quality care across the country.

✔️Provide clear protocols for managing these cancers, from initial treatment to long-term follow-up.

Standardised care ensures that every patient gets the best possible support, no matter where they are.

#SalivaryGlandCancerUK #ClinicalGuidelines #BestPractice #Healthcare #SGCDay #SalivaryGlandCancerDay
@sgcanceruk
about 4 days ago Our third core aim is to improve the rate of early diagnosis for salivary gland cancers. The sooner a cancer is found, the more treatment options are available. We're committed to: ✔️Educating the public on the signs and symptoms of salivary gland cancers so they know when to seek medical advice. ✔️Working with healthcare professionals to ensure these rare cancers are on their radar for timely diagnosis. Early diagnosis saves lives. Help us spread#primarycare #SalivaryGlandCancerUK #EarlyDiagnosis #HealthAwareness #SGCDay #SalivaryGlandCancerDay #PrimaryCare @SGCancerUK
Our fourth core aim is to optimise the pathways to diagnosis. Navigating the healthcare system can be complex and stressful. We are working to:

✔️Improve the efficiency and speed of the diagnostic process for salivary gland cancers.

✔️Support patients as they move through different stages of diagnosis, from initial consultation to receiving a definitive answer.

A smooth and swift pathway to diagnosis can make a world of difference.
#SalivaryGlandCancerUK #PatientCare #DiagnosisPathway #SGCDay #SalivaryGlandCancerDay
@sgcanceruk
about 4 days ago Our second core aim is to support those living with and beyond salivary gland cancer. We are dedicated to: ✔️Understanding the Experience: We want to build a deeper understanding of what it’s like to live with and beyond these cancers, including the physical and emotional challenges. ✔️Improving Lives: We support the development of interventions and resources to improve the quality of life for patients and their families. Your experience matters. We're here to listen, learn, and advocate for better care. #SalivaryGlandCancerUK #LifeAfterCancer #PatientSupport #CancerJourney #SGCDay #SalivaryGlandCancerDay #LWBC @SGCancerUK
Our third core aim is to improve the rate of early diagnosis for salivary gland cancers.
The sooner a cancer is found, the more treatment options are available. We're committed to:

✔️Educating the public on the signs and symptoms of salivary gland cancers so they know when to seek medical advice.

✔️Working with healthcare professionals to ensure these rare cancers are on their radar for timely diagnosis.

Early diagnosis saves lives. Help us spread the word!
#SalivaryGlandCancerUK #EarlyDiagnosis #HealthAwareness #SGCDay #SalivaryGlandCancerDay #PrimaryCare
@sgcanceruk
about 4 days ago It's #SalivaryGlandCancer Day! Our first core aim is all about connection! We're building vital support and information networks to bring together everyone affected by salivary gland cancers. This means: ✔️Connecting Patients: Providing access to the latest information and a mutual support network so no one has to face their journey alone. ✔️Raising Awareness: We aim to educate both the public and the clinical community on the symptoms and treatments of these rare cancers. ✔️Driving Research: We bring together patients, clinicians, and researchers to push for better diagnosis, improved treatments, and brighter futures. Together, we can create a stronger, more informed community. Follow us and share to help us achieve our mission! #SalivaryGlandCancerUK #RareCancer #Community #CancerAwareness #SGCDay #SalivaryGlandCancerDay @SGCancerUK
Our second core aim is to support those living with and beyond salivary gland cancer.
We are dedicated to:

✔️Understanding the Experience: We want to build a deeper understanding of what it’s like to live with and beyond these cancers, including the physical and emotional challenges.

✔️Improving Lives: We support the development of interventions and resources to improve the quality of life for patients and their families.

✔️Your experience matters. We're here to listen, learn, and advocate for better care.

#SalivaryGlandCancerUK #LifeAfterCancer #PatientSupport #CancerJourney #SGCDay #SalivaryGlandCancerDay #LWBC
@sgcanceruk
Thank you so much for sharing and showing your support, it's amazing - today is so exciting seeing everyone come together. @sgcanceruk
about 4 days ago Today is World Salivary Gland Cancer Awareness Day! There are more than 20 types of this cancer, and because they are so rare, diagnosis is often poor and treatment is limited. This is why our work is so vital. Help us raise a global voice today by sharing this post. #WorldSGCAwarenessDay #SalivaryGlandCancer #RareCancerAwareness #SGCUK #Unite #SGCDay #SalivaryGlandCancerDay @SGCancerUK
Today we are launching the worlds first Salivary Gland Cancer Awareness Day!

There are over 20 types of rare salivary gland cancer, but they represent only 0.3% of cancers globally. In the UK they affect about 15 people in every million per year. That is approximately 900 cases per year with 50% in major salivary glands in the head & neck, 25% in minor salivary glands in the head & neck and, 25% in non-head & neck i.e. the trachea, breast, Bartholin's gland and skin.  Many of them are less than 1 in a million and adenoid cystic carcinoma (ACC) is one of the most common affecting around 5 per million.

There is no risk profile for these cancers and diagnoses are often late. Patients can be asymptomatic or have symptoms that are ‘out of context’ and easily explained by something else, so missed as being cancer. Prognoses are poor and ACC has a high rate of metastasis with distant recurrence despite surgery and radiotherapy. ACC typically grows slowly so patients can live for many years and sometimes decades with slowly growing metastatic tumours.

Surgery is the main treatment and is sometimes combined with radiotherapy. There is a lack of drug therapies, the biologies of these cancers is poorly understood and because they are rare and, research is decades behind other common cancers. More research with is desperately needed to develop new or better treatments.

On October 4th we are launching the worlds first salivary gland cancer day with a theme that highlights the power of unity “One Community, One Cause: Standing Together in Solidarity for Positive Change”.  We want to spread awareness of these cancers and ensure more clinicians, researchers, patients and public are informed, empowered, and supported.

As we launch today at our in person event we will be sharing information on our 8 aims to highlight the unmet needs for these cancers and the people who are affected by them.

Every share, post, and conversation matters. Will you join us?

#SGCDay #SalivaryGlandCancerDay #rarecancer #rarecancerresearch #ACC
@sgcanceruk
about 5 days ago Understanding the Anatomy of Salivary Gland Cancers. Did you know there are 23 types of SGC, and they can arise in salivary and secretory glands all over the body? Our new video is a must-watch guide to the anatomy of this rare disease, covering: ➡️ Major and minor salivary glands, lacrimal gland (eye), Bartholin’s gland (vulva), trachea, breast, and skin. ➡️ Impact of Treatment: The surrounding nerves (optic, trigeminal) and bone structures (maxilla, mandible) affected by essential treatments. We've dedicated growing resources on our website to explain the anatomy of these complex sites. Knowledge is power - watch the video and use our resources to get informed! #SalivaryGlandCancerDay #SGCResearch #RareCancer #Anatomy #MedicalEducation #SGCDay @SGCancerUK
about 6 days ago More Than 23 Reasons to Raise Awareness. These rare cancers can occur in salivary glands or other secretory glands like the breast, vulva, skin, or lacrimal gland. Because they are so rare and varied, and poorly understood, they require specialised care and expert knowledge. If you or someone you know has been affected, you understand the challenge of early diagnosis - signs are often missed or non-existent. By coming together as #OneCommunity, we can: ✅ Ensure more people are informed and supported. ✅ Empower patients with the latest information. ✅ Connect clinicians and researchers to drive better treatments. Join us and explore the growing resources on our website! #SalivaryGlandCancer #RareCancerAwareness #SGCUK #KnowTheSigns #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 7 days ago The Fight Against Salivary Gland Cancer Knows No Borders! 🌍 SGC is rare, but our community can be vast and powerful. To ensure our message reaches every corner of the world, we've created supporter images and translated our key awareness post into multiple international languages. Because rare cancer advocacy requires worldwide collaboration, we need you to help spread the word in your community, in your language. Watch this video, then visit our shareable resources to download and share the translated post! If we haven't done your language yet... let us know! Let's make this a truly international day of awareness. #GlobalHealth #RareCancer #OneCommunityOneCause #SGC #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 15 days ago Ever wondered how you taste your favourite foods? It's not just your tongue! Your sense of smell does most of the work, and for patients with salivary gland cancer, treatments can have a big impact on this amazing system. 💙 Here's why: Saliva: It's a key ingredient in tasting! Saliva helps food molecules reach your taste buds. Taste Buds: Radiotherapy can sometimes directly damage your taste buds. Nerves: The tiny nerves that send taste signals to your brain can also be affected. These changes can make food taste bland or even unpleasant, which is a real challenge for many survivors. But there's hope! Simple tips like adding lemon juice, herbs, and spices can help bring back the joy of eating. Let's raise awareness for the everyday challenges faced by those with salivary gland cancer. Share this post to help us spread the word! 👇 #SalivaryGlandCancerAwareness #OneCommunityOneCause #CancerSurvivor #TasteChanges #sgcawareness @SGCancerUK
about 17 days ago September is Childhood Cancer Awareness Month. It's a time to remember the young people and their families who are facing a diagnosis. We support all efforts to improve care and research for children with cancer. While salivary gland cancer is more commonly diagnosed in adults, it can also occur in children. This is why it's so important for parents to trust their instincts and contact their GP if they have any concerns about their child's health. By raising awareness, we can help ensure that potential symptoms are not overlooked and that young patients receive the care they need as early as possible. #ChildhoodCancerAwareness #SGCUK #CancerResearch #KidsWithCancer #Support #ACC #AdenoidCysticCarcinoma #Protons #PBT @SGCancerUK
about 19 days ago What is carcinosarcoma? It's a very rare and aggressive type of salivary gland cancer that can be tricky to diagnose because it's made up of two different kinds of cancer cells. Here's what you need to know: It's extremely rare, affecting less than 1% of people with salivary gland tumors. It often grows and spreads quickly. It typically appears as a rapidly growing lump in the jaw, cheek, or mouth, and may cause pain or even facial weakness. If you notice a new or fast-growing lump, it's always best to get it checked out by a doctor. Early diagnosis is key. Raising awareness about rare cancers like carcinosarcoma is vital for better patient outcomes. Every share helps us educate more people! 💙 #SalivaryGlandCancer #RareCancers #Carcinosarcoma #CancerAwareness #HeadAndNeckCancer #OneCommunityOneCause #Sarcoma @SGCancerUK
about 21 days ago Salivary Gland Cancer Day is a global movement for change, and you can be part of it! There are 6 simple ways to get involved, from spreading the word on social media to exploring our educational resources. Your support creates ripples of positive change. Learn all the ways you can contribute by visiting our website: ➡️ #SGCDay #SalivaryGlandCancerDay #GetInvolved #SupportResearch #AwarenessMatters @SGCancerUK

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Salivary Gland Cancer UK is a registered charity number 1182762.