Salivary Gland Cancer UK
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  • About Us
    • Our Mission
    • The Story so Far - Our 5 year impact Report (2024)
    • Our 8 Aims
    • SGC Research
    • SGC Research Grants
    • UK Salivary Gland Cancer Research Working Group (UKSGCWG)
    • SGC Travel Grants
    • Board of Directors
    • Our Partners
    • Salivary Gland Cancer UK Mascots
    • PPIE (Patient and Public Involvement and Engagement) Work
  • Treatment Options
    • Diagnosis
    • Surgery
    • Radiotherapy
    • Drug Therapies
      • Drug Therapies - Immunotherapy
    • Clinical Trials
    • Radiofrequency ablation (RFA)
    • Gene profiling or tumour profiling or genomic testing
    • Patient follow up after treatment for SGC
  • Our Stories
    • Alex's story
    • Alison's story
    • Alison C's story
    • Allison D's story
    • Barry's story
    • Christine's story
    • Dawn's story
    • Heather's story
    • Ian's story
    • Jade's story
    • Jamie's story
    • Jev's story
    • Jim's story
    • Kamla's story
    • Karen's story
    • Matilda's story
    • Ruth's story
    • Sarah's story
    • Shane's story
    • Susan's story
    • Wendy's story
  • Patient and Carer Support
    • Anxiety Management Techniques
    • Exercise for the head, neck and shoulder area
    • Returning to Work
    • Tips on communicating with an electrolarynx
    • How can I best support my mother?
    • Kemi shares her advice for supporting a loved one with cancer
    • Radiotherapy Treatment and Late Effects
      • The Late Effects of Radiotherapy Treatment with Emma Hallam, Consultant Therapeutic Radiographer
      • What is Radiation Induced Fibrosis? And How To Reduce Its Effects
      • Tips for Salivary Gland Cancer Patients Living with Radiotherapy Late Effects
      • Top tips for radiotherapy treatment from our network member Dawn
    • Dawn's tips for someone close to someone with Salivary Gland Cancer
    • Pain
    • Quality of Life (QoL) in Adenoid Cystic Carcinoma (ACC) Patients with Dr Joe Haigh
    • Mindfulness Practice with Emma Hallam, Consultant Therapeutic Radiographer
    • Psychological Support for those affected by Salivary Gland Cancers
  • Support SGC UK (and get involved)
    • Join Our Network (and get our newsletter)
    • Donate tissue to the Biobank
    • Our 2025 Events (gatherings and webinars)
    • Donate and help our work
    • Patient โ€“ Researcher Trial Discussions
    • Podcasts and Videos
    • Volunteering with SGC UK at a conference or event
    • Salivary Gland Cancer Day - 4th October
    • SGC UK Shareable Resources
    • Leaflets and Flyers
    • Ribbons, t shirts, baseball caps and much more...coming soon
  • Salivary Gland Cancers
    • A guide to different types of Salivary Gland Cancers
    • Acinic Cell Carcinoma (AcCC)
    • Adenocarcinoma
    • Adenocarcinoma, NOS
    • Adenoid Cystic Carcinoma (ACC)
    • Basal Cell Adenocarcinoma (BCAC)
    • Clear Cell Carcinoma (CCC)
    • Mucoepidermoid Carcinoma (MEC) & Warthin-like MEC
    • Salivary Duct Carcinoma (SDC)
    • Secretory Carcinoma (SC)
    • Polymorphus adenocarcinoma (PAC)
    • Carcinosarcoma
    • Myoepithelial carcinoma (MC)
  • Body sites affected by SGC
    • Major Salivary Glands - Parotid, Sublingual and Submandibular
    • Secretory Glands - The Lacrimal Gland
    • Secretory Glands - Bartholin's Gland
    • Secretory Glands - The Lining of the Trachea
    • Skin
    • Nerves in the Head and Neck - Trigeminal Nerve
    • Nerves in the Head and Neck - Optic Nerve
    • Bone Structures in the Face
    • The Spine
    • The Ears
    • The Eye
    • How we taste
    • How we swallow
  • Fundraising for SGC UK
    • Run
    • Walk
    • Swim
    • Some fundraising ideas
    • Paying in the funds you've raised
    • Fundraising at work
    • Leaving a gift in your will
  • Salivary Gland Cancer Science - Research Updates
    • Tracheal Adenoid Cystic Carcinoma: why studying it matters - and how biobanks help
    • Salivary gland cancer: new classifications and diagnostic challenges
    • New study examining disruption of oncogenic pathways in mucoepidermoid carcinoma (MEC)
    • New study reveals late recurrence and low survival rate of adenoid cystic carcinoma of the breast
    • New study using real-world UK data supports the use of HER2-directed therapies for HER2-positive salivary gland cancers
  • UK Salivary Gland Cancer Research Working Group (UKSGCRWG)
    • Research Working Group Members
    • RQ 1. Address the utility of Guidelines for Salivary Gland Cancers (SGC)
    • RQ 2. Assess the variation in histopathology reporting for Salivary Gland Cancers (SGC)
    • RQ 3. Standardise the decision-making processes for patients who have technically operable, Salivary Gland Cancer (SGC), where the surgery carries high morbidity
    • RQ 4. Improve the diagnostic pathway for Salivary Gland Cancer (SGC) patients
Join Our Network Add to Biobank Our Events Donate

Working for those with rare salivary gland cancers.

Acinic Cell Carcinoma (AcCC)
Adenocarcinoma
Adenocarcinoma, NOS
Adenoid Cystic Carcinoma (ACC)
Basal Cell Adenocarcinoma (BCAC)
Clear Cell Carcinoma (CCC)
Salivary Duct Carcinoma (SDC)
Secretory Carcinoma (SC)
Mucoepidermoid Carcinoma (MEC)
Myoepithelial Carcinoma (MC)
Carcinosarcoma
Polymorphous Adenocarcinoma

Myoepithelial carcinoma (MC)

Myoepithelial carcinoma makes up less than 2% of all salivary gland tumours

Polymorphus adenocarcinoma (PAC)

Polymorphous adenocarcinoma (PAC) accounts for around 12% of malignant salivary gland tumours

Carcinosarcoma

Carcinosarcoma accounts for less than 1% of all salivary gland tumours

Salivary Gland Cancer Day - 4th October

12 Jun 2025

Raising Awareness for a Rare Disease. Welcome to the WORLD'S FIRST Salivary Gland Cancer Day, being held annually on the 4th of October.

Acinic Cell Carcinoma (AcCC)

Acinic cell carcinomas account for 1-6% of salivary gland tumours.

Basal Cell Adenocarcinoma (BCAC)

Basal Cell Adenocarcinoma (BCAC) accounts for 1-3% of salivary gland cancers

UK Salivary Gland Cancer Research Working Group (UKSGCWG)

26 May 2025

This working group is to identify the gaps in Salivary Gland Cancer Research, develop strategic priorities for this area of research and deliver them.

Adenoid Cystic Carcinoma (ACC)

Adenoid Cystic Carcinoma (ACC)

The Story so Far - Our 5 year impact Report (2024)

28 Jan 2025

Our impact report showcases all the progress that's been made in just five years (2019-2024)

SGC Travel Grants

Apply for funding to travel to a conference or workshop. We welcome all applications that are aligned with our strategy.

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Salivary Gland Cancers
Our Stories
Patient and Carer Support
Support SGC UK (and get involved)
about 3 days ago A Huge Week for SGC UK at IAOO 2025! What an incredible week it's been for Salivary Gland Cancer UK at IAOO 2025 in Liverpool โ€“ the biggest head and neck cancer gathering in the UK! ๐ŸŽ‰ It was truly inspiring to be back among so many dedicated professionals and connect with our global community. Your support helps us make a real impact, and this week was proof! Here's a peek at what we achieved: Sharing Patient Power: Our very own Co-Founder, Emma Kinloch, delivered a keynote speech all about making sure patient voices are heard in research. She, of course, also spread the word about our upcoming Salivary Gland Cancer Day on October 4, 2025! Expert Discussions: We were part of an expert panel discussing the "Evolution in Salivary Cancer Care," bringing together leading minds from around the world to talk about improving treatments. Showcasing Research: Our funded research was highlighted in presentations, including one by Dr. Sam Rack on improving diagnosis and another by Milad Tavakoli from Leeds on quality improvement initiatives. This means real progress thanks to your support! Connecting & Spreading Awareness: Our dedicated stall was buzzing! Huge thanks to our amazing network members, Sally Crowe and Nicola Freeman, who helped us meet people from all corners of the globe. We even captured some fantastic photos with our SGC Awareness Day banner โ€“ thank you to everyone who took part! It was great to be back in Liverpool, though we still haven't managed to get on that Ferris wheel! ๐Ÿ˜‚ Maybe next time! Thank you, as always, for being part of our incredible #OneCommunityOneCause. Together, we're making a difference! ๐Ÿ’™ #SGCUK #SalivaryGlandCancer #CommunityStrong #CancerAwareness @SGCancerUK
about 5 days ago Do you know about Myoepithelial Carcinoma (MC)? It's a rare and often aggressive salivary gland cancer, making up less than 2% of all SGC tumours. MC can be challenging to diagnose due to its varied appearance under the microscope. It often behaves more aggressively, with symptoms developing quickly and a higher chance of invading nearby tissues or spreading to lymph nodes. While most common in the parotid gland, MC can appear anywhere in the head and neck. Symptoms might include a fast-growing lump, pain, or facial weakness. Treatment usually involves surgery and radiotherapy, ideally at a specialist centre. Because MC is so rare, raising awareness is crucial for better diagnosis, treatment, and research to improve patient outcomes. Learn more about this complex cancer and help us spread vital awareness โžก๏ธ ๐Ÿ”— salivaryglandcancer.uk/salivary-gland-cancers/myoepithelial-carcinoma-mc #RareCancer #MyoepithelialCarcinoma #SalivaryGlandCancer #HeadAndNeckCancer #CancerAwareness #SGCUK #Oncology #CancerEducation #ParotidCancer #EarlyDetection @SGCancerUK
about 12 days ago ๐Ÿ’ป Join our monthly Salivary โ€˜Stop byโ€™ sessions on Zoom! Running in 2025 โ€“ no agenda, just drop in and chat with people who get it. ๐Ÿ—“๏ธ 4 Aug, 1 Sep, 6 Oct, 3 Nov, 1 Dec (7โ€“8 pm). Email [email protected] to get your link. These informal drop-ins are a chance to ask questions, share, or just listen. Weโ€™d love to see you there ๐Ÿ’™ #SGCUK #SalivaryGlandCancer #SupportSessions #Community @SGCancerUK
For professionals navigating the complexities of salivary gland cancer, ensuring comprehensive patient support is paramount. Beyond clinical treatment, peer-to-peer connection offers invaluable emotional and practical benefits.

Salivary Gland Cancer UK is committed to providing this vital layer of support. Our monthly "Salivary 'Stop by'" Zoom sessions offer a unique, informal space where patients and carers can drop in, share experiences, gain insights, and find solidarity with others who truly "get it." These sessions are unscripted and designed for open dialogue.

We encourage healthcare professionals to signpost patients to this free and accessible resource. It's a powerful way to augment the care you provide, helping your patients build resilience and feel connected within a supportive community.

Scheduled for 2025 (all 7-8 PM BST):
๐Ÿ—“๏ธ August 4th, September 1st, October 6th, November 3rd, December 1st

To receive the Zoom link and learn more about how these sessions can benefit your patients, please email admin\@salivaryglandcancer.uk.

#SalivaryGlandCancer #PatientAdvocacyย ย #OncologyCare #PatientResources #SupportNetworks
@sgcanceruk
about 17 days ago A little reminder of hope, even in difficult moments. If today is tough, hold onto the small lights. Youโ€™re not alone ๐Ÿ’™ #SGCUK #CancerSupport #Hope #OscarWilde #MentalHealthMatters @SGCancerUK
about 20 days ago In this heartfelt video, Susan Morrison shares her personal story of losing her father to Adenoid Cystic Carcinoma, a rare form of salivary gland cancer first diagnosed in 2012. She speaks with love and honesty about the man her dad was, the impact of his illness, and why she now supports Salivary Gland Cancer UK in his memory. Susan continues to raise funds and awareness so that others affected by this rare cancer feel seen, supported and better understood. We are so extremely grateful to her for sharing his story and standing with us. Watch the full video on our YouTube: #SalivaryGlandCancer #SGCUK #AdenoidCysticCarcinoma @SGCancerUK
about 24 days ago Stay informed and connected with Salivary Gland Cancer UK. Sign up to our email newsletter and be the first to hear about events, support, research news and ways to get involved. Join our network today: #SGCUK #SalivaryGlandCancer #CancerCommunity #Newsletter @SGCancerUK
๐Ÿ“ฌ Stay connected with Salivary Gland Cancer UK

Our email newsletter keeps healthcare professionals, researchers, patients and advocates informed about the latest in salivary gland cancer.

Be the first to hear about:
โœ… Upcoming events
โœ… Research updates
โœ… Support initiatives
โœ… Collaboration opportunities

Whether you're working in oncology, head and neck care, rare cancer research or patient advocacy, we welcome you to be part of our growing network.

Sign up today:
https://lnkd.in/eeJ5zEYe

#SGCUK #SalivaryGlandCancer #RareCancer #OncologyCommunity #CancerResearch #ProfessionalNetwork #CancerAwareness #HeadAndNeckCancer #Newsletter
@sgcanceruk
about 26 days ago An inspiring story ๐Ÿ’™ This survivor shares how focusing on small goals and positive thoughts helped during recovery from adenoid cystic carcinoma. These stories remind us how much strength lives in the people behind the diagnosis. Read more: #SGCUK #AdenoidCysticCarcinoma #CancerSupport #PatientStory @SGCancerUK
about 27 days ago Lace up your running shoes for an incredible cause! ๐Ÿƒโ€โ™€๏ธ๐Ÿƒโ€โ™‚๏ธ We're inviting you to take on The Big Half Marathon on Sunday, September 7th, 2025, and help us raise vital funds for Salivary Gland Cancer UK! This vibrant, inclusive half marathon celebrates the diversity of London, taking you through Tower Hamlets, Southwark, Lewisham, and Greenwich, starting at iconic Tower Bridge and finishing by the Cutty Sark. No entry fee โ€“ just commit to fundraising! It's a fantastic opportunity to challenge yourself, experience London, and make a real difference for those affected by salivary gland cancer. Ready to run for a reason? Sign up today and join our team! Every step, every mile, helps us support patients and fund crucial research. โžก๏ธ EMAIL now to secure your spot and start your fundraising journey for Salivary Gland Cancer UK - [email protected] #TheBigHalf #LondonHalfMarathon #RunForACause #SalivaryGlandCancerUK #CharityRun #Fundraising #CommunityRun #CancerAwareness #ChallengeYourself #LondonEvents @SGCancerUK
about a month ago ๐Ÿงฌ Pathologists at the The University of Sheffield have provided an overview of the new RCPath dataset in the journal Diagnostic Histopathology. Professor Ali Khurram, one of the lead authors, offers insights into new classification challenges and what this means for diagnosis and treatment. ๐Ÿ‘‰ Read more about this major advance in our new article: @shefunihealth #SalivaryGlandCancer #CancerResearch #Pathology #RareCancer #RCPath #TargetedTherapy @SGCancerUK
about a month ago Did you know some treatments for salivary gland cancer can affect our ears and hearing? Hearing difficulties can occur during radiotherapy or as a late-onset side effect some months or even years after treatment. Not everyone who has radiotherapy in the head or neck will experience problems with their hearing. The dose and type of radiation therapy used, as well as the location of the tumour site are all factors that affect how likely it is that hearing loss develops. Learn more about how treatment affects our ears and hearing: #SGCUK #SalivaryGlandCancer #HeadAndNeckCancer #CancerAwareness #tinnitus @SGCancerUK
The UK's Royal College of Pathologists (RCPath) has updated its guidance for reporting salivary gland cancers following publication of the 5th edition of the World Health Organisation (WHO) classification of Head and Neck tumours.

The WHO has classified 15 types of benign tumours and 21 types of malignant tumours of the salivary glands.ย These classifications are crucial for standardising cancer reporting methods and advancing diagnosis and treatment.

Pathologists at the The University of Sheffield have provided an overview of the new RCPath dataset in the journal Diagnostic Histopathology.ย Expert Pathologists across the country contributed to these guidelines, led by Professor Ali Khurram.

๐Ÿ‘‰ Read more about this major advance in our new article:
https://lnkd.in/eYKAcsDc

#SalivaryGlandCancer #CancerResearch #Pathology #RareCancer #RCPath #TargetedTherapy #hnc
@sgcanceruk
about a month ago ๐Ÿ“ฃ Want to help raise awareness of salivary gland cancer? Our shareable resources make it easy to spread the word and support our work. From social graphics to info sheets, you can help amplify the message in your community and online. Every post shared makes a difference. Explore and download: #SGCUK #SalivaryGlandCancer #CancerAwareness #GetInvolved @SGCancerUK
Some treatments for salivary gland cancers can affect your ears and hearing.

Hearing difficulties can occur during radiotherapy or as a late-onset side effect some months or even years after treatment.

In many cases where some hearing loss occurs, symptoms begin to develop in the first two years after treatment ends.

Not everyone who has radiotherapy in the head or neck will experience problems with their hearing. The dose and type of radiation therapy used, as well as the location of the tumour site are all factors that affect how likely it is that hearing loss develops.

Learn more about how treatments for salivary gland cancer can affect the ear and hearing:
https://lnkd.in/eVnQTEYf

#SGCUK #SalivaryGlandCancer #HeadAndNeckCancer #RareCancer #Oncology #CancerAwareness #MedicalEducation #ENT #Pathology #HealthcareProfessionals #tinnitus
@sgcanceruk
about a month ago To celebrate world head and neck cancer day on July 10th, we will be holding a webinar about Mucoepidermoid Carcinoma (MEC). ๐Ÿ—“ When: Thursday 10th July 2025, 4-5pm UK time ๐Ÿ’ป Where: Online via Zoom โ€“ join from the comfort of your home! ๐Ÿ‘ฅ What to Expect: โœจ Friendly and informal presentation and discussion โœจ A chance to connect with others who understand โœจ Helpful resources Email [email protected] to join. #MucoepidermoidCarcinoma #SGC #SGCUK #SalivaryGlandCancerAwareness #CancerSupportCommunity #CancerAwarenessCampaign @SGCancerUK
about a month ago Exciting news from the University of Queensland, where researchers have secured major funding for a 3-year study to develop a new treatment strategy for adenoid cystic carcinoma (ACC). Investment in new treatment strategies is crucial, especially for rare and under-researched cancers like salivary gland cancer. Every breakthrough starts with research like this. We welcome continued global efforts to improve outcomes for people affected by cancer and look forward to seeing where this work leads. Read more: #CancerResearch #SalivaryGlandCancer #SGCUK #MedicalResearch #CancerCare #InnovationInHealth #adenoidcysticcarcinoma #acc @SGCancerUK
about a month ago Thank you so much Suzie Morrison for all your support. It was amazing to finally meet you in person at our last gathering๐Ÿฅฐ. @SGCancerUK
about a month ago It's National Patient Data Day Today weโ€™re recognising the power of patient data to drive real change in healthcare. For rare cancers like salivary gland cancer, patient data is especially important. It helps researchers understand patterns, improve treatments, and highlight where support is most needed. At Salivary Gland Cancer UK, we believe in the value of evidence, the importance of collaboration, and the power of every patient story. To learn more about how patient data can shape the future of care, visit: ๐Ÿ”— www.usemydata.org.uk #NationalPatientDataDay #SGCUK #SalivaryGlandCancer #PatientData #DataSavesLives #CancerAwarenes @SGCancerUK
about 2 months ago Hosting something social? Make it count for Salivary Gland Cancer Day ๐Ÿ’™ Not into sports or big physical challenges? Thatโ€™s completely fine. There are so many fun and meaningful ways to get involved just by bringing people together and that's the most important thing about Salivary Gland Cancer Day. Think movie night, karaoke, bake sale or a games evening with friends. Whatever you enjoy doing, you could even turn it into a fundraiser that supports vital research, awareness and care. Itโ€™s your event, your way, all for a good cause. Get inspired and find out how to get involved: #SGCDay #SalivaryGlandCancerDay #SGCUK #CancerAwareness #FundraisingForHope #SupportSGCUK #DoItYourWay #MakeADifference @SGCancerUK
about 2 months ago Promising News in Cancer Treatment! Royal Oak Hospital is piloting Proton Arc Therapy, a new type of treatment that could offer more precise and less harmful care for people with cancer. This approach uses a sweeping arc of proton radiation to better target tumours while protecting healthy tissue. For people with rare and complex cancers like salivary gland cancer, treatments like this could help improve outcomes and quality of life. It's encouraging to see innovation focused on patient-centred care. Weโ€™ll be following this closely. #CancerInnovation #ProtonTherapy #ProtonArc #SalivaryGlandCancer #SGCUK #CancerResearch #PatientFocusedCare @SGCancerUK
๐Ÿ”ฌ New Research Blog: Tracheal Adenoid Cystic Carcinoma (ACC)

Why does studying tracheal ACC matter? And how can biobanks help researchers make progress in such a rare and understudied cancer?

Our latest blog explores the importance of understanding tracheal ACC, the role of tissue donation, and how research can lead to better care and outcomes for patients.

For rare cancers like this, every sample and every study counts.

๐Ÿ“– Read the full update:
https://lnkd.in/e9jzzM-8

#SalivaryGlandCancer #ACC #TrachealCancer #RareCancer #SGCUK #CancerResearch #Biobanks #ResearchMatters #adenoidcysticcarcinoma
@sgcanceruk
about 2 months ago Take on Swim Serpentine for SGCUK! ๐ŸŠโ€โ™€๏ธ There are places still available! Ready for an unforgettable challenge in the heart of London? Join Team SGCUK at this yearโ€™s Swim Serpentine and help us raise vital funds for research, awareness and support for those affected by salivary gland cancer. ๐ŸŠโ€โ™€๏ธ Choose your distance ๐Ÿ“ Swim in the iconic Serpentine, Hyde Park ๐Ÿ’™ Be part of something meaningful Whether youโ€™re a seasoned swimmer or looking for a new challenge, weโ€™d really love to have you on board. ๐Ÿ—“๏ธ Event date: 14 September 2025 Find out more and register today: #SwimSerpentine #SGCUK #SalivaryGlandCancer #FundraisingChallenge #CharitySwim #MakeWavesForChange #CancerAwareness @SGCancerUK
Take on Swim Serpentine for SGCUK! ๐ŸŠโ€โ™€๏ธ
There are places still available!

Ready for an unforgettable challenge in the heart of London? Join Team SGCUK at this yearโ€™s Swim Serpentine and help us raise vital funds for research, awareness and support for those affected by salivary gland cancer.

๐ŸŠโ€โ™€๏ธ Choose your distance
๐Ÿ“ Swim in the iconic Serpentine, Hyde Park
๐Ÿ’™ Be part of something meaningful

Whether youโ€™re a seasoned swimmer or looking for a new challenge, weโ€™d really love to have you on board.

๐Ÿ—“๏ธ Event date: 14 September 2025
Find out more and register today:
https://lnkd.in/eahuntjj

#SwimSerpentine #SGCUK #SalivaryGlandCancer #FundraisingChallenge #CharitySwim #MakeWavesForChange #CancerAwareness
@sgcanceruk
about 2 months ago Looking Back On ESMO Rare Cancers 2025 ๐Ÿ’™ What a fantastic and productive conference #ESMORareCancers25 was earlier this year! Dr Metcalf delivered an excellent mini oral presentation on behalf of our UK Salivary Gland Cancer Research Working Group (UKSGCRWG), titled: โ€œAdvancing Salivary Gland Cancer Research: A Multidisciplinary Approach to Addressing the Unmet Clinical Need.โ€ We were also proud to present a second piece of work by another UKSGCRWG member: โ€œClinical Trials for Patients with Salivary Gland Cancers: A Systematic Review of Worldwide Registers and an Evaluation of Current Challenges.โ€ It was a privilege to connect with colleagues across Europe and the US, and to share our vision for collaborative, multidisciplinary progress in salivary gland cancer research. Events like ESMO Rare provide an invaluable platform for sharing knowledge, exploring new therapies, and driving forward meaningful change in rare cancer care. Weโ€™re already looking forward to what 2026 brings. #SGCUK #SalivaryGlandCancer #RareCancers #CancerResearch #Oncology #UKSGCRWG #ESMO #ESMORareCancers25 #CollaborativeScience #ClinicalTrials #HeadAndNeckCancer #ResearchMatters @SGCancerUK
It's National Patient Data Day on June 24th, recognising the power of patient data to drive real change in healthcare.

At the inaugural event in Leeds, hosted by use MY data, Emma will be leading a panel to discuss 'How can we establish a UK-wide data environment to help in the research of less common diseases, where a multi-nation view is essential?'. She will be joined by LifeArc's Rebecca Cosgriff and Jo Gumbs from Ocular Melanoma UK for what promises to be an insightful and productive session.

For rare cancers like salivary gland cancer, patient data is especially important. It helps researchers understand patterns, improve treatments, and highlight where research and support is most needed.

You can register to attend here: https://lnkd.in/ekVykEm6

At Salivary Gland Cancer UK, we believe in the value of evidence, the importance of collaboration, and the power of every patient story.

To learn more about how patient data can shape the future of care, visit:
๐Ÿ”— www.usemydata.org.uk

#NationalPatientDataDay #SGCUK #SalivaryGlandCancer #PatientData #DataSavesLives #CancerAwareness #NPaDD2025
@sgcanceruk
about 2 months ago After undergoing radiotherapy for adenoid cystic carcinoma, artist Alex Orange Drink has released a powerful new single, Everything Is Broken โ€” a raw and honest reflection on navigating treatment, uncertainty and the emotional weight of cancer. Through music, Alex turns vulnerability into strength, sharing a message that will resonate with many in our community. โ€œI didnโ€™t know if Iโ€™d ever sing again... This was the first thing I wrote when I tried.โ€ Listen to the track and read the story behind it: #SalivaryGlandCancer #AdenoidCysticCarcinoma #SGCUK #CancerAwareness @SGCancerUK
about 2 months ago On June 1st, we took time to think of everyone who has lived through a cancer diagnosis, including so many in our salivary gland cancer community. This day is about recognising what it takes to move forward after treatment. The strength it takes to heal, adjust and carry on. Every journey is different and every step matters. If you've finished treatment, are still being monitored, or just figuring things out as you go, we see you. We're with you. And if you feel like sharing your story, weโ€™d love to hear it, either in the comments or by dropping us a message. #NationalCancerSurvivorsDay #SGCUK #SalivaryGlandCancer #CancerAwareness #LifeAfterCancer #SupportCommunity #StrongerTogether @SGCancerUK
about 2 months ago Facing salivary gland cancer can feel overwhelming, but you do not have to go through it alone.๐Ÿ’™ Whether you are newly diagnosed, going through treatment, or in remission, our community is here to support you every step of the way. We understand the emotional and physical challenges, and we are here to help you stay strong and resilient. Reach out, connect with others who truly understand, and remember that we are all stronger together. #SupportMatters #StrongerTogether #SalivaryGlandCancer @SGCancerUK
At the ABPI/PMCPA code partnership event we were delighted to share our collaborative work with Roche, co-producing genomics leaflets for patients.

The leaflets we created are free to download from our website, specifically designed to be clear and understandable for all and, explain why genomic profiling is important and how it can help patients https://lnkd.in/ebh9-xMU. Later this year we will be updating the leaflets so don't hesitate to get in touch if you'd like to work with us on this.

The meeting showcased three very different, but truly great, Industry-Charity Partnerships. We were delighted to be joined by Crohn's & Colitis UK who partnered with J&J Innovative Medicine Europe, Middle East & Africa (EMEA) and, Black Women Rising UK who partnered with Gilead Sciences.

Our thanks go to the The Association of the British Pharmaceutical Industry (ABPI) and PMCPA for hosting the event, Karen Wood for co-presenting with Emma Kinloch and, all those who support, facilitate and do the hard work to ensure the success of these hugely important collaborations.

๐Ÿ‘

Tariro Kabba Mearns & Pike Ltd Leanne Pero MBE Hannah Hart Kate Downey The Association of the British Pharmaceutical Industry (ABPI) Amit Aggarwal Brian Duggan Victoria Bates

#ABPI #PMCPA #salivaryglandcancer #co-production #collaboration
#ppi #genomicprofiling #genomics #blackwomenrising #crohns #rarecancerresearch
@sgcanceruk

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Salivary Gland Cancer UK is a registered charity number 1182762.